Efter flere års tilløb er det lykkedes for os at få den amerikanske søster organisation VHL alliance’s “VHL handbook Kids edition” oversat til dansk.
Resultatet er : VHL Håndbog Børne- og ungdomsudgaven
En bog helt specielt henvendt til børn som skal vide mere om VHL af den ene eller anden grund – og den er også god at få forstand af for os der er lidt ældre
Håndbogen kan du frit downloade ved at klikke her.
Foreningen har ladet bogen trykke som en god solid håndbog i farver. Alle medlemmerne af Foreningen af von Hippel Lindau patienter og deres pårørende kan frit få et eksemplar pr. medlemskab.
Kontakt foreningen pr. mail eller få den udleveret på næste årsmøde og spar foreningen for portoudgiften, samtidig med du møder andre VHL patienter og deres pårørende. Vi har meget mere til fælles end bare VHL genet !
Ønsker du blot at købe bogen koster den kr. 125,- + porto (500 gram).
23 Responses
https://top100model.com
Greetings! Very useful advice within this post! It is the little changes that produce the greatest changes. Many thanks for sharing!
דירות דיסקרטיות בתל אביב
Itís difficult to find well-informed people about this topic, however, you seem like you know what youíre talking about! Thanks
דירות דיסקרטיות ברמת גן
You should take part in a contest for one of the greatest websites on the web. I will highly recommend this website!
Pag-sign Up
Your point of view caught my eye and was very interesting. Thanks. I have a question for you.
Kayıt Ol
I am sorting out relevant information about gate io recently, and I saw your article, and your creative ideas are of great help to me. However, I have doubts about some creative issues, can you answer them for me? I will continue to pay attention to your reply. Thanks.
gate io giriş
After reading your article, it reminded me of some things about gate io that I studied before. The content is similar to yours, but your thinking is very special, which gave me a different idea. Thank you. But I still have some questions I want to ask you, I will always pay attention. Thanks.
gate.io
After reading your article, it reminded me of some things about gate io that I studied before. The content is similar to yours, but your thinking is very special, which gave me a different idea. Thank you. But I still have some questions I want to ask you, I will always pay attention. Thanks.
gate io
After reading your article, it reminded me of some things about gate io that I studied before. The content is similar to yours, but your thinking is very special, which gave me a different idea. Thank you. But I still have some questions I want to ask you, I will always pay attention. Thanks.
gate io nedir
Your article made me suddenly realize that I am writing a thesis on gate.io. After reading your article, I have a different way of thinking, thank you. However, I still have some doubts, can you help me? Thanks.
Kayıt Ol | Gate.io
Your article made me suddenly realize that I am writing a thesis on gate.io. After reading your article, I have a different way of thinking, thank you. However, I still have some doubts, can you help me? Thanks.
heets sigara fiyat
sizde uygun fiyatlardan heets satin alin.
gate io borsası
At the beginning, I was still puzzled. Since I read your article, I have been very impressed. It has provided a lot of innovative ideas for my thesis related to gate.io. Thank u. But I still have some doubts, can you help me? Thanks.
binance account creation
Can you be more specific about the content of your article? After reading it, I still have some doubts. Hope you can help me.
binance account creation
Thank you for your sharing. I am worried that I lack creative ideas. It is your article that makes me full of hope. Thank you. But, I have a question, can you help me?
регистрация на бинанс
Can you be more specific about the content of your article? After reading it, I still have some doubts. Hope you can help me.
https://stevieraexxx.rocks/city/Discreet-apartments-in-Petah-Tikva.php
I have to thank you for the efforts youve put in writing this blog. Im hoping to check out the same high-grade blog posts by you later on as well. In fact, your creative writing abilities has encouraged me to get my own website now 😉
zonguldak escort
sitemizi ziyaret etmek için url tıklamanız yetreli olucaktır
Cel mai bun cod de recomandare Binance
I don’t think the title of your article matches the content lol. Just kidding, mainly because I had some doubts after reading the article.
criptomoedas
Obrigado por compartilhar. Estou preocupado por não ter ideias criativas. É o seu artigo que me deixa cheio de esperança. Obrigado. Mas, eu tenho uma pergunta, você pode me ajudar?
gate io fon şifresi unuttum
I am a student of BAK College. The recent paper competition gave me a lot of headaches, and I checked a lot of information. Finally, after reading your article, it suddenly dawned on me that I can still have such an idea. grateful. But I still have some questions, hope you can help me.
gateio
I may need your help. I’ve been doing research on gate io recently, and I’ve tried a lot of different things. Later, I read your article, and I think your way of writing has given me some innovative ideas, thank you very much.
gate.io
I may need your help. I’ve been doing research on gate io recently, and I’ve tried a lot of different things. Later, I read your article, and I think your way of writing has given me some innovative ideas, thank you very much.
gate.io
I may need your help. I tried many ways but couldn’t solve it, but after reading your article, I think you have a way to help me. I’m looking forward for your reply. Thanks.